
Do you remember that children's book "Fortunately, Unfortunately" ? This little boy goes through his day with "Fortunately" - a good thing.... "unfortunately"... a bad thing. I don't remember the whole story, but I do remember...
Unfortunately, I had to jump out of the plane.... Fortunately, I had on a parachute... Unfortunately, it had a hole in it.....
And on an on!
These past two weeks I've been living this... let me give you a few examples!
Fortunately - the doctor I saw in NY had one more idea to help with my severe fatigue.
Unfortunately - it meant I had to give myself a shot everyday.
Fortunately - it doesn't really hurt and I can do it!
Unfortunately - my whole family runs when they see me preparing for the next injection.
Fortunately - IT IS WORKING!!!! Whoooo Hoooo!!!! I've had the best week and half I've had in years! I'm not healed, but my brain is more awake, I feel more like myself and I even have less fatigue!
Unfortunately - I had to have a sleep study in the middle of that time - and I sure didn't sleep well... which has thrown me backwards a bit.
Fortunately - The sleep center is such a high quality one, I got to sleep on a "Sleep Number" bed and it was as comfortable as possible with wires glued all over your head and face and things up your nose and on your finger :-) (yes... I did play with the numbers LOL)
Unfortunately - The sleep study showed that I have sleep apnea - a common development in dysautonomia.
Fortunately - It is very MILD sleep apnea.
Unfortunately - I have to try a CPAP mask - and I HATE things that go over my nose.
Fortunately - I have a daughter who works with ordering home health care items and she showed me that there are some great options that only go IN your nose - not over it!
Unfortunately - I have to go back this week for another sleep study to calibrate the CPAP. (more guk in my hair)
Fortunately - It's not til later this week - so I've had a lot of fun painting this week!!!
Unfortunately - I had a sudden and severe flare of my gasteoparesis... the delayed gastric emptying that causes stomach pain and nausea.
Fortunately - I have medications to deal with this.
Unfortunately - it's a really bad one and the meds are only lessening the pain and nausea, NOT taking them away.
Fortunately - Just as I was tempted to despair - I received a very special gift from one of my husband's co-workers. I was reminded that God remembers me and cares about me even when life takes it's down turns.
"Can a mother forget the baby at her breast and have no compassion on the child she has borne? Though she may forget, I will not forget you!
See, I have engraved you on the palms of my hands;
your walls are ever before me.
~Isaiah 49:15-16